Statistically Funny: Scientific publications

Key professional publications I've written or co-authored (English language publications only for now), plus biography pages on Wikipedia. See here for blog posts.

My ORCID page.

Latest:

What the systematic review of HPV clinical study reports does, and does not, reveal: commentary on Jørgensen et al. Systematic Reviews, 2020.

The epidemiology of systematic review updates: a longitudinal study of updating of Cochrane reviews, 2003 to 2018. MedRxiv preprint, 2019, by me, Jenny Doust, Mike Clarke, Paul Glasziou. Open data at Github.

Enough evidence and other endings: a descriptive study of stable Cochrane systematic reviews in 2019. MedRxiv preprint, 2019, by me and Lars Hemkens. Open data at GitHub.

Concern noted: a descriptive study of editorial expressions of concern in PubMed and PubMed Central. By Melissa Vaught, Diana C. Jordan and me. Research Integrity and Peer Review, 2017. (With personal related blog post at PLOS Blogs.)

Institutional repository LinkOut: a new full text access feature in PubMed. NLM Technical Bulletin, 2017.

Concern noted: a descriptive study of editorial expressions of concern in PubMed and PubMed Central. BioRxiv preprint, 2017, by Melissa Vaught, Diana C. Jordan and me. Open data in the Open Science Framework.

Biomedical journals and preprint services: friends or foes? Q&A/roundtable with John Ioannidis and others at Clinical Chemistry, 2016 (PDF).

PubMed review methods filter and methods research support from PubMed Health, Cochrane Methods, 2016 (PDF, page 27).

Nondisclosure of financial interest in clinical practice guideline development: an intractable problem?, Editorial in PLOS Medicine, 2016

Post-publication activity on PubMed Commons: an evaluation of comments from 3 months in 2014. Poster at 2016 AAAS meeting, by Melissa Vaught and I (PDF).

Scholarly communication

A stronger post-publication culture is needed for better science, Editorial in PLOS Medicine, 2014.

About clinical effectiveness, health research & research methods

Reporting guidelines for abstracts of systematic reviews, in PLOS Medicine, 2013.

75 trials and 11 systematic reviews a day: how will we ever keep up?, in PLOS Medicine 2010.

Getting interventions from trials to clinical practice, in the BMJ 2010.

A reader's guide to author and sponsorship bias in clinical research, in the Journal of the Royal Society of Medicine, 2006.

Consumer and researcher collaboration in trials, in Clinical Trials, 2005.

Learning from evidence-based mistakes, in the BMJ, 2004.

About the revision of the Declaration of Helsinki (ethics of human experimentation), in the BMJ, 2001.

Consumers and evidence-based medicine, in the Medical Journal of Australia, 2000.

Reflections on consumer issues and disability-adjusted life years (DALYs), in Reproductive Health Matters, 2000.

Invited commentary on an article about mammography and the politics of randomized trials, in the BMJ, 1998.

Ethical considerations and the quality of randomized trials, in the International Journal of Technology Assessment in Healthcare, 1996.

Consumer interests and experiences in health care

A qualitative analysis of evidence-based healthcare information from the users' perspective, in BMC Health Services Research, 2013.

Developing priority-setting criteria for patients' and consumers' interests in health technology assessment (HTA) and systematic reviewing, in the International Journal of Technology Assessment in Health Care, 2011.

This one is mostly explaining the German healthcare system, in the BMJ, 2008.

(See below for consumer interests and experiences in maternity care specifically)

Consumer participation in health care, policy and research

Core competencies for shared decision-making training programs, in the Journal of Continuing Education for Health Professional, 2013.

An article about integrating consumers in the development of clinical practice guidelines in the Proceedings of the American Thoracic Society, 2012.

This one is about using analytic hierarchy processes to find out patient preferences as part of HTA, in the International Journal of Technology Assessment in Health Care, 2011.

(Repeat from above) Consumer and researcher collaboration in trials, in Clinical Trials, 2005.

A review of consumer involvement in peer review of research and articles, in a book, Peer Review in Health Sciences, Second edition, 2003.

Whether consumer participation in health research has made a difference, in the Journal of Health Services Research and Policy, 1999.

Speaking up for ourselves: a history of consumer advocacy in health care, in the International Journal of Technology Assessment in Healthcare, 1998.

An article about the need for consumer participation in clinical practice guidelines, in the International Journal for the Quality of Healthcare, 1996.

The power of sharing knowledge: about the role for consumer participation in the newly formed Cochrane Collaboration, monograph published by the UK Cochrane Centre, 1994.

Communication

Presenting unwelcome research findings, in Virtual Mentor, 2014.

Protocol for a systematic review on improving understanding and minimizing psychological harm from screening, in The Cochrane Library, 2009.

Developing the methodology for an evidence-based health information website in Patient Education and Counseling, 2008.

Just how demanding can we get before we blow it? Personal reflections on empowerment, personal choice and class, in the BMJ 2003.

A systematic review of the effects of the internet, for the National Institute of Clinical Studies in 2003.

A systematic review of risk communication, in the book Evidence-based Patient Choice, 2003.

My comments at PubMed Commons:

Archived comments

Biography

Lucy Wills, in the James Lind Library, 2007

George Orwell, tuberculosis and streptomycin, in the James Lind Library, 2004

And on Wikipedia (most recent first):

Nathalie Josso, 2023

Elisabeth Wollman, 2023

Reremoana Theodore, 2023

Ume Tange, 2022

Gertruda Biernat, 2022

Nina Virchenko, 2022

Willie Pearson Jr, 2020