Consumer advocacy >> epidemiology >> effectiveness >> the internet
The birth of my first child - at home, in Sydney in 1981 - led me into both maternity consumer activism and perinatal epidemiology. It all went from local to national then international, and from maternity/perinatal to health generally pretty quickly. And when I first started communicating health information on the internet in the early 1990s, it was love at first sight!
Now I've been communicating the results of trials and systematic reviews for more than two decades - and that's the subject of my PhD-in-progress.
I list scientific publications here. As well as Statistically Funny, I occasionally blog in other places. You can see those posts here.
I'm on Twitter: @hildabast
More on how I got from there to here
I've had the honor of leading these health consumer groups:
- In maternity care, Homebirth Australia (1986-1992) and Maternity Alliance (1989-1993)
- Consumers' Health Forum of Australia (CHF) (Chairperson 1997-2001, on the board from 1989, and one of the two first honorary life members)
- Cochrane Collaboration Consumer Network (1994-2003): here's my paper that was the backdrop to starting this group
In those consumer advocacy years, I chaired the process developing the Australian national Statement on Consumer and Community Participation in Health and Medical Research.
I also spent lot of time on national ethics committees, the Medical Services Advisory Committee (which determines which new health procedures will get public reimbursement) and national health priority-setting.
But my favorite part was the Consumers' Health Forum itself.
Along the way I started doing health research. My first foray into perinatal epidemiology was data collection and analysis on home births with the National Perinatal Statistics Unit (published in 1990).
The photo (left) is the day we officially founded the Collaboration in Oxford in 1993 (and there's that mauve jacket again).
From 1997 to 2001, I was (part-time) coordinating editor of the Cochrane review group on Consumers and Communication. That's the part of the organization responsible for reviews on communication and the relationship between patients and professionals.
As well as taking up systematic reviewing, I started cartooning - as part of the training workshops I was doing in understanding health research, and as editor of Cochrane News (from issue 3 in 1995 to issue 12 in 1998). I recycled a few of them for Statistically Funny in the early days (like this one).
By 2001, my time as a consumer advocate had wound down. My main work became communicating clinical effectiveness information on the internet, first with this website and then this one.
In 2004, I moved to Germany to work as Head of the Health Information Department at a new national agency, IQWiG (the Institute for Quality and Efficiency in Healthcare). You can read about this work in these slides from 2010.
I'm chief editor for PubMed Health and PubMed Commons, at the National Center for Biotechnology Information (NCBI), in the National Library of Medicine (NLM) (one of the Institutes of the NIH).
The PubMed Health team curates clinical effective resources through the PubMed system, aiming to make systematic reviews and meta-analyses more accessible to, and useful for, consumers, clinicians, and researchers. A biomedical research glossary is another PubMed Health project. PubMed Commons is the commenting system in PubMed.
Statistically Funny is a personal hobby. What's on this website reflects my personal views only and is not in any way associated with my day job or any other organization with which I am involved. I have a personal website that connects my blogging, activities, and publications.
I'm also a member of the editorial advisory board of PLOS Medicine, a peer-reviewed open access journal. And do some Wikipedia editing, too.
I hope you enjoy Statistically Funny!
Statistically Funny is a personal project, and the views expressed are personal, and do not necessarily reflect the views of NCBI, NLM, or the NIH.