Consumer advocacy >> epidemiology >> effectiveness >> the internet >> PhD & writer
The birth of my first child - at home, in Sydney in 1981 - led me into both maternity consumer activism and perinatal epidemiology. It all went from local to national then international, and from maternity/perinatal to health generally pretty quickly. And when I first started communicating health information on the internet in the early 1990s, it was love at first sight!
Now I've been analyzing and communicating the results of trials and systematic reviews for more than two decades. Ways that shifting evidence affects the validity of systematic reviews was the subject of my PhD (awarded 2020).
I list scientific publications here. My main blog is Absolutely Maybe at PLOS Blogs, and I'm a contributor to WIRED. I occasionally blog at the BMJ. You can see previous posts here. I am working on a biography.I am on the editorial board of the independent Drugs and Therapeutics Bulletin, and I am the lead for the independent advisory group to update the Cochrane review on exercise therapy and ME/CFS. And I am a Wikipedian.
I'm on Twitter: @hildabast
More on how I got from there to here
I've had the honor of leading these health consumer groups:
- In maternity care, Homebirth Australia (1986-1992) and Maternity Alliance (1989-1993)
- Consumers' Health Forum of Australia (CHF) (Chairperson 1997-2001, on the board from 1989, and one of the two first honorary life members)
- Cochrane Collaboration Consumer Network (1994-2003): here's my paper that was the backdrop to starting this group
In those consumer advocacy years, I chaired the process developing the Australian national Statement on Consumer and Community Participation in Health and Medical Research.
I also spent lot of time on national ethics committees, the Medical Services Advisory Committee (which determines which new health procedures will get public reimbursement) and national health priority-setting.
But my favorite part was the Consumers' Health Forum itself.
Along the way I started doing health research. My first foray into perinatal epidemiology was data collection and analysis on home births with the National Perinatal Statistics Unit (published in 1990).
The photo (left) is the day we officially founded the Collaboration in Oxford in 1993 (and there's that mauve jacket again).
From 1997 to 2001, I was (part-time) coordinating editor of the Cochrane review group on Consumers and Communication. That's the part of the organization responsible for reviews on communication and the relationship between patients and professionals.
As well as taking up systematic reviewing, I started cartooning - as part of the training workshops I was doing in understanding health research, and as editor of Cochrane News (from issue 3 in 1995 to issue 12 in 1998). I recycled a few of them for Statistically Funny in the early days (like this one).
By 2001, my time as a consumer advocate had wound down. My main work became communicating clinical effectiveness information on the internet, first with this website and then this one.
In 2004, I moved to Germany to work as Head of the Health Information Department at a new national agency, IQWiG (the Institute for Quality and Efficiency in Healthcare). You can read about this work in these slides from 2010.
I was chief editor for some PubMed projects from 2011 to 2018, at the National Center for Biotechnology Information (NCBI), in the National Library of Medicine (NLM) (one of the Institutes of the NIH). One involved curating clinical effective resources and running a since discontinued website called PubMed Health. And the other was PubMed Commons, a commenting system that used to be part of PubMed. I also ran several research integrity projects at PubMed.
In 2018, I returned to Australia to work on my PhD and finally begin writing a biography I've been researching for years.
Statistically Funny is a personal hobby. What's on this website reflects my personal views only and is not in any way associated with any organization with which I am involved. I have a personal website that connects my blogging, activities, and publications. I'm also a member of the human research advisory group for PLOS One.
I hope you enjoy Statistically Funny!
Last updated 29 February 2020